The Washington Times-Herald

Community News Network

January 17, 2013

Slate: Is the neurodiversity movement misrepresenting autism?

Much of what we know about autism has changed since my son Jonah was diagnosed in 2001, but the metaphors we use to conceptualize it have remained largely the same. Portia Iversen, founder of Cure Autism Now, writes in her book "Strange Son" that she thought of her son's autism as a "deep well" he had fallen into. Jenny McCarthy describes the "window" through which she struggled to free her son from his autism. Arthur Fleischmann states in Carly's Voice, his account of how his severely autistic daughter developed the ability to communicate using a keyboard, that "There was a wall that couldn't be breached, locking her in and us out." The more profoundly impaired the child, it seems, the more likely these images of physical barriers are to crop up, as parents search desperately for the "intact mind" (Iversen again) they believe is there, somewhere deep down, despite often brutal symptoms that suggest the opposite.

It's not just the hope of desperate parents that fuels this quest — although, as one of those parents myself, I would never underestimate our ability to persist in our hopes and efforts even in the face of abundant evidence. Over the past decade, our faith has been validated by the emergence of several seemingly low-functioning autistics whose "intact minds" have been revealed through their brilliant writing. These celebrities, including Amanda Baggs, Sue Rubin, Tracy Thresher, Larry Bissonnette and others, speak minimally, if at all, and require support for even the most basic of life skills. Yet their blogs, videos and written commentary — as seen on major networks such as CNN and in Academy Award nominated documentaries — have inspired countless parents around the world.

Jonah was 4 years old when he started writing in chalk on our driveway without ever having been taught — although his phrases, like "FBI WARNING," were admittedly less communicative than Carly Fleischmann's complaint, "HELP TEETH HURT." Despite that, I really believed, for many years, that Jonah would develop into the next Tito Mukhopadhyay, the Indian boy featured in Iversen's "Strange Son," who published several books of poetry despite autism so severe he was nonverbal; prone to constant, repetitive movements, or "stims"; and, not infrequently, disruptive, noncompliant, and even aggressive with his mother.

1
2 3 4 5 6 7
Text Only
Community News Network
  • The case for separate beds

    The other night I slept on a twin bed in the guest room of the house I share with my husband and our two kids.
    It was the best night's sleep I've had in years.

    April 17, 2014

  • Raw oysters spike U.S. rise in bacterial infections, CDC reports

    Raw oysters, so good with hot sauce, increasingly can carry something even more unsettling to the stomach: A bacteria linked to vomiting, diarrhea and pain.

    April 17, 2014

  • VIDEO: Boston bomb scare defendant appears in court

    The man accused of carrying a backpack containing a rice cooker near the Boston Marathon finish line on the anniversary of the bombings was arraigned Wednesday. He's being held on $100,000 bail.

    April 17, 2014

  • Consumer spending on health care jumps as Affordable Care Act takes hold

    Nancy Beigel has known since September that she would need hernia surgery. She couldn't afford it on her $11,000 yearly income until she became eligible for Medicaid in January through President Barack Obama's signature health care law.

    April 17, 2014

  • To sleep well, you may need to adjust what you eat and when

    Sleep.  Oh, to sleep.  A good night's sleep is often a struggle for more than half of American adults.  And for occasional insomnia, there are good reasons to avoid using medications, whether over-the-counter or prescription.

    April 16, 2014

  • Doctors to rate cost effectiveness of expensive cancer drugs

    The world's largest organization of cancer doctors plans to rate the cost effectiveness of expensive oncology drugs, and will urge physicians to use the ratings to discuss the costs with their patients.

    April 16, 2014

  • Low blood-sugar levels make for grousing spouses

    Husbands and wives reported being most unhappy with their spouses when their blood-sugar levels were lowest, usually at night, according to research released this week in the Proceedings of the National Academy of Sciences. Missing a meal, dieting or just being hungry may be the reason, researchers said.

    April 16, 2014

  • Victimized by the 'marriage penalty'

    In a few short months, I'll pass the milestone that every little girl dreams of: the day she swears - before family and God, in sickness and in health, all in the name of love - that she's willing to pay a much higher tax rate.

    April 15, 2014

  • Allergies are the real midlife crisis

    One of the biggest mysteries is why the disease comes and goes, and then comes and goes again. People tend to experience intense allergies between the ages of 5 and 16, then get a couple of decades off before the symptoms return in the 30s, only to diminish around retirement age.

    April 15, 2014

  • treadmill-very-fast.jpg Tax deduction for a gym membership?

    April marks another tax season when millions of Americans will deduct expenses related to home ownership, children and education from their annual tax bill. These deductions exist because of their perceived value to society; they encourage behaviors that keep the wheels of the economy turning. So why shouldn't the tax code be revised to reward preventive health?

    April 15, 2014 1 Photo